As momentum continues to build following the launch of Responsum Health’s partnership with the Pulmonary Fibrosis Foundation (PFF), we are just now beginning to assess the impact of the announcement. So far, the press release has generated 103 total mentions with a total reach of over 44.7M (million) people. In just a short month, over 330 patients have signed up for Responsum accounts. The following list includes some of the publications that carried news of the announced collaboration.
It is with a very heavy heart that I must share with you that yesterday, February 7, the PF community lost a gentle soul and true hero, Prasha Tuladhar. She was 31 years old.
Prasha is the reason that Responsum for PF exists.
In 2014, when a team of graduate students from Carnegie Mellon University and I needed to select a therapeutic area to test the concept of an internet search tool and customized newsfeed for patients with chronic disease, we decided to focus on PF because one of our patient volunteers – the one who gave the most of her precious time and incredible mind to our researchers – was Prasha.
In an interview with Bill Vick, an IPF patient and the founder of PF Warrior, Responsum CEO Andy Rosenberg highlights the platform's value as a a one-of-a-kind tool designed to improve patients’ knowledge, grow their self-confidence and provide for the organization and coordination of their health care information.