The Pulmonary Fibrosis Foundation states that idiopathic pulmonary fibrosis affects one in 200 US adults over the age of 65. Roughly 100,000 Americans are currently living with IPF, with 50,000 new diagnoses and an estimated 40,000 deaths—rivaling breast cancer—occurring annually. All of this is associated with a large economic and healthcare burden, as respiratory care comprised nearly 37% of all healthcare costs in 2011.* Despite these startling statistics, IPF hasn’t received the fanfare and funding of breast cancer and other chronic diseases. To help shine a light on this issue, PFF has designated September as Pulmonary Fibrosis Awareness Month.
Adding momentum, Responsum Health is honored to enter the battle against IPF with the November 2017 launch of its unique digital platform. Developed after several years of research, interviews and collaboration with IPF patients from across the country, Responsum is a one-of-a-kind tool designed to improve patients’ knowledge and self-confidence, while facilitating organization and coordination of their healthcare needs. Features will include a tailored newsfeed for a continual stream of relevant information; a personal profile to keep track of health, goals, symptoms, etc.; the ability to store all personal healthcare information and plan for future needs; and act as a portal to fellow patients and for advocacy efforts. All information will be fully encrypted for maximum protection and kept strictly confidential, as per HIPAA.
We’re excited our much-anticipated portal will help produce better outcomes by engaging patients in their health-care. We’re hopeful that, in time, Responsum will become a vital asset to the IPF and greater PF community.
*Raimundo, K., Chang, E., Broder, M.S., Alexander, K., Zazzali, J., & Swigris, J.J. (2016). Clinical and Economic Burden of Idiopathic Pulmonary Fibrosis: A Retrospective Cohort Study. BMC Pulmonary Medicine, 16(2). http://doi.org/10.1186/s12890-015-0165-1
Robert Saint Laurent, Responsum Chief Editor
Rob Saint Laurent has been a contributing health writer for SOCO Magazine since 2007 and a certified master fitness professional for roughly 20 years. He is the author of FitWorks! Your 21st Century Way to Total Fitness and editor of the local documentary Fed Up on the SouthCoast: A Sequel to the Movie “Fed Up." Rob holds a MEd in health promotion/disease prevention from Bridgewater State University.