Researchers have found an overwhelming need for better quality and reliability in online IPF-related information.
Because idiopathic pulmonary fibrosis is a lesser known condition, questions often arise. People use the internet to find both scientifically proven and anecdotal information about symptoms, management techniques and medications. However, new research reveals that the internet may not always be reliable regarding IPF.
Canadian medical researchers found that IPF-related information on almost 200 websites was often incomplete, inaccurate and outdated.* The study looked at information from many online resources, including advocacy associations, news reports, scientific groups, blogs and businesses. Using the DISCERN tool to examine the quality, reliability, and overall publication of each of these sites, the team discovered that many sites recommended medications that either had no benefit or were harmful for IPF. They concluded that the medical community must take a more active role in giving patients accurate and reliable sources of information.
You can take action to make sure the information you find is appropriate. Look for sites that are government-sponsored, since their information must be reviewed several times before being published. Further, always consult your provider to be sure online “facts” are correct.
The full article may be found at: https://www.sciencedaily.com/releases/2016/02/160205100454.htm